Hey friends, family, and all my fur-friends out there – it's time for another AML update. So, picture this: I thought I’d finally given that little bastard, AML, the slip. Stem cell transplant? Done. All signs pointed to “success” – cue the slow clap, right? But hold up. Just when I was about to take a victory lap, the cancer cells decided to throw themselves a little rave, getting larger and making a scene. And to say they’re being stubborn is the understatement of the year – they’re clinging to me like gum on a shoe. I’m as happy about this as I am about Monday morning traffic.
So here’s the plan, as explained by my team at UHW. It seems the next step in this saga of “let’s give cancer a kick in the… well, everywhere,” involves a slightly left-field approach. They're going to give me a top-up of donor stem cells, all in the hope of triggering this fun-sounding phenomenon called Host vs. Graft disease. In non-medical terms? We’re looking to rile up my immune system to throw an epic tantrum, target these cancer cells, and leave me the last man standing in my own bloodstream. Sounds bonkers, right? But desperate times, as they say. And hey, what’s a little battle between friends when I’ve already been through the cancer version of “Survivor: Hospital Edition.”
I’d like to say I’m taking it in stride, but I’d be lying if I said I wasn’t gutted. I mean, come on. Just when I thought I’d sent AML packing, here it is, like an unwanted houseguest who’s unpacked and refuses to leave. I know the drill by now – more biopsies, more treatments, more wondering what on earth I’ve done to get myself in this predicament – but I’d be lying if I didn’t admit that the news hit like a ton of bricks. “Gutted” barely scratches the surface. If honesty could break the internet, I’d be the world’s top hacker by now.
But there’s no sense sitting around feeling sorry for myself (even if wallowing for a bit is tempting). I’ve come this far, haven’t I? I mean, two bone marrow biopsies this year, both showing the little devils are still around? Fine, I get it. But here’s the thing – if this disease thinks it’s got me beat, it’s got another thing coming. I’ve got too many stories left to tell, too many burgers to flip at Berbillions, and far too many Greyhound Rescue walks left to enjoy with my mate Lily (or at least watch her from the sofa!).
So, onwards and upwards, with a few colorful expletives thrown in for good measure. I’ll be fighting tooth and nail to make this work. Thanks to everyone who's stuck by me through this rollercoaster – I wouldn’t have made it this far without all of you. Now, here’s to hoping the next update has me waving a victory flag and finally telling these cancer cells to sod off, once and for all. Cheers to a little laughter in the chaos – I’ll keep you posted!
The light at the end of my particular tunnel shines brightly, beckoning with the promise of better days ahead. But oh, what a journey it has been! The road to recovery is not a smooth, paved highway but rather a bumpy, pothole-ridden path, complete with hurdles, hoops, and the occasional detour through Swampy Despair. It's been a month since my new Stem Cell Transplant, and so far, the road has been as rocky as a mountain goat's favorite hangout.
Imagine waking up every morning feeling like you've been run over by a truck, then backed over just to make sure they got you good. That's my life now, with severe fatigue pinning me to the bed like a forgotten sock under the couch. But hey, who needs energy anyway? I hear it's overrated.
The days I'm not impersonating a hibernating bear, I'm up and about, battling an army of ailments. Severe sickness? Check. Stomach issues? Oh, absolutely. It's like my digestive system decided to take a sabbatical, leaving behind only the interns to run the show.
Doctors mutter about Graft vs. Host Disease like it's a quirky character in a TV sitcom. "Needs more magnesium," they say. If I had a nickel for every time I heard that, I could buy a lifetime supply of those terrible magnesium pills that taste like chalk-flavored misery. "Needs more potassium," they add. Great, now I'm in a relationship with bananas that's starting to feel uncomfortably codependent.
My medicine cabinet has turned into a miniature pharmacy, complete with pills, potions, and the occasional mysterious vial that looks like it belongs in a wizard's lair. The merry-go-round of medication is a joyride through the theme park of my health, except the ride never stops and half the time it makes me sick. Kill or cure? More like thrill or spill.
Taking my daily pills has become a strategic operation. There's a lineup like it's the red carpet of the Oscars: "And here we have the anti-nausea pill, looking stunning tonight, followed by the ever-popular anti-rejection medication, always a crowd favorite!" But the real star is the magnesium supplement, hated by all, yet somehow always making a grand appearance.
I guess this stage of recovery is the ultimate game of "Will It Blend?" but instead of a blender, it's my body, and instead of fruits and veggies, it's a smorgasbord of side effects. Each day is a fun new surprise: "What will make me feel terrible today? Let's spin the wheel!"
Between the fatigue, sickness, and stomach issues, my days are a series of battles that would put any epic fantasy novel to shame. Yet, despite all the chaos, there's a bizarre, almost comedic rhythm to it all. Picture me, groggily shuffling to the kitchen in the morning, clutching my stomach with one hand and a banana in the other, muttering "needs more potassium" like some sort of deranged mantra.
In three weeks, I'll know more when my marrow results are confirmed. Until then, it's a game of wait and see, with a side of hope and a dash of dread. Will my body finally decide to cooperate? Will I finally be able to look at a banana without feeling like I'm about to turn into one? Only time will tell.
For now, I find humor in the absurdity of it all. My road to recovery may be rocky, but at least it provides plenty of material for a good laugh. After all, they say laughter is the best medicine. Well, laughter and magnesium. And potassium. And about fifty other things, but who's counting?
In the grand arena of the University Hospital of Wales, an epic battle took place that will be remembered as the clash of titans. On one side, the invincible AML (Acute Myeloid Leukemia), and on the other, the dream team of Professors, Doctors, Super Nurses, Healthcare Assistants, Physios, and Dietitians. Leukemia may have thought it had this one in the bag, but today, it got a beating from the best team on the planet.
The first half was rough. Leukemia came out swinging, scoring points left and right, and by half-time, it was winning. The clock was ticking, and certain death loomed closer and closer. The only way out? The legendary BMT (Bone Marrow Transplant) play. It was do or die, and the stakes couldn’t have been higher.
The Professors huddled, strategizing like seasoned coaches. They passed me between themselves with the precision of a football team orchestrating a perfect play. Suddenly, an outside shot appeared. With a look of steely determination, they executed the move. BAM! The shot ricocheted off the post, and Leukemia was beaten down. The crowd went wild!
But the battle wasn’t over yet. The Super Nurses swooped in, their skills shining brighter than ever. With surgical precision and unmatched teamwork, they followed up on the Professors' play. It was an epic skirmish of new cells versus infection. The new cells, fresh recruits from the BMT, charged onto the field. Their vigor and vitality provided the edge we needed.
Day 13 post-transplant, and here I am, weak and slow, but very much alive. The experts say I’m just a rookie, but with further expert care, I’m sure the Professors and their team will lead me to victory. Today, in the Haematology Day Centre and Ward, we all stand tall. Puff out your chests and give yourselves a round of applause, team. You have achieved what was once deemed impossible.
To all the supporters – friends, family, and the fantastic crew at lilylongdog.co.uk – your cheers and unwavering support were like the 12th man on the pitch. You made the difference, and today, we salute you with our highest regard.
, let me tell you, this was more than just a match. It was a full-on war. And against all odds, the healthcare team emerged victorious. AML, you were a tough opponent, but today, you met your match.
Let's raise a glass (of whatever non-alcoholic beverage the dietitians approve) to the incredible squad at the University Hospital of Wales. You’ve not just saved a life; you’ve orchestrated a miracle. Stand tall, you legends.
In the locker room, there’s a sense of camaraderie and triumph. The Doctors are high-fiving, the Nurses are dancing a victory jig, and even the Dietitians are joining in the celebration, probably with some healthy snacks. We all know it’s not over yet – there are more battles to be fought, more challenges ahead. But for today, we bask in the glory of our hard-fought victory.
AML thought it had us, but thanks to the tireless effort and unmatched skill of our medical dream team, we’ve turned the tide. So, here’s to the Professors, Doctors, Super Nurses, Healthcare Assistants, Physios, and Dietitians – the best team on the planet. You’ve achieved what was once thought impossible, and for that, we thank you from the bottom of our hearts.
And to Leukemia, let this be a lesson: you may be tough, but you’re no match for the University Hospital of Wales Dream Team.
The stakes? My future. After a meeting with a Bone Marrow Transplant Professor, I find myself gearing up for a high-stakes gamble. Sometime within the next six weeks, at short notice, the BMT team will attempt a transplant. It's a game of all or nothing, and although the odds stack up like a precarious house of cards, I've got little choice. It's all in.
To say I'm feeling a mix of hope and trepidation is an understatement. Imagine being on a rollercoaster, but instead of enjoying the thrill, you're hanging on for dear life, hoping the tracks hold up. That's where I am right now. The doctors and nurses can only act on the situation before them, guided by data and results. It's nice and encouraging to hope for the best, but in the end, it's all about the numbers.
On the bright side, after a battery of tests and examinations, I'm in good physical shape considering everything. That's a pro. The cons, however, are not so easily dismissed. The odds of a successful transplant stand at 50%. I guess it's better than flipping a coin, but the other side of that same coin is something I can't bear to think about. Failure means another journey begins, one I’m not eager to embark on.
The doctors, with their stethoscopes and stern expressions, have been very clear. They can't guarantee anything, but they also remind me that there’s a chance—an even chance, at that. It’s a bit like being dealt a poker hand with a pair of tens. You’re not out of the game, but you’re certainly not holding a royal flush either.
In moments like these, humor becomes a survival mechanism. So, I find myself making jokes with the nurses, because if I don’t laugh, I might just cry. I tell them that I've got so many scans and tests under my belt that I’m practically a human piñata—hit me hard enough, and who knows what’ll spill out. They laugh, and for a moment, the room feels a little lighter.
As I prepare for the transplant, I remind myself that life is a series of bets and bluffs. Sometimes you win, sometimes you lose, but the important thing is that you keep playing. So, here I am, placing my bet on the table, going all in. I’m holding my cards close to my chest, hopeful yet realistic.
With a bit of luck, a lot of medical expertise, and a dash of humor, I might just come out the other side of this with a winning hand. And if not, well, I’ll face that journey with the same hopeful trepidation and a twist of comedy that’s gotten me this far. After all, in the game of life, it’s not about the cards you’re dealt, but how you play the hand. Here's to hoping my next hand is a winner.
Time for an update on my ongoing saga with AML. The latest bone marrow biopsy results weren't quite what we had hoped for. My Professor and I were expecting a greater response to the chemotherapy. This was my second round of outpatient chemotherapy, and let me tell you, it hit me like a steam train barreling down the tracks at full speed.
The grand plan remains the same: a bone marrow transplant. Yet, this goal seems to be slipping further and further away. My chances have dwindled significantly, but I refuse to let that discourage me. The final shot will be at the transplant, come what may. Regardless of the odds, even if they’re stacked against me, I have to give it a go. I've been through chemotherapy in every flavor: high dose, intense inpatient sessions, and four rounds as an outpatient. It’s taken a toll on my body, mobility, strength, and stamina. Honestly, it's failing quicker than I ever anticipated.
But here’s where the humor kicks in. Picture this: I’ve become quite the expert at navigating hospital corridors with the grace of a drunk giraffe on roller skates. My body may be slower, but my spirit? It’s still racing ahead, fueled by determination and the occasional chocolate bar (because, let’s face it, chocolate makes everything better).
Despite the physical challenges, I have immense faith in my team of medical superheroes – the Professors, Doctors, and Nurses. These people are extraordinary. They know their stuff and are committed to making my remaining time as comfortable as possible, even if my mobility is now somewhat limited. Imagine trying to dance the cha-cha with one leg in a cast – that’s me on a good day.
The reality is tough. I won’t sugarcoat it. There are days when my body feels like it’s betraying me. My strength is waning, and simple tasks now seem like monumental challenges. Yet, in those moments of despair, I remember I’m in the best hands. My medical team is striving to make the transplant and treatment possible, pulling every trick from their hats to give me a fighting chance.
In the end, it’s about having faith and belief – faith in the process, belief in the people around me, and, most importantly, faith in myself. I’ve learned to find humor in the small things, to laugh at the absurdity of it all, and to cherish every moment of light-heartedness. After all, laughter is the best medicine, right?
So here I am, still fighting, still hoping, and yes, still cracking jokes. Because if there’s one thing cancer can’t take away from me, it’s my sense of humor. Here's to hoping for better days ahead, one chuckle at a time.
Acute Myeloid Leukemia (AML) is a relentless adversary, challenging individuals on a physical, emotional, and psychological level. The diagnosis of AML often initiates a tumultuous journey filled with uncertainty, fear, and hope. In the face of such adversity, emerging treatment options like Azacitidine, Venetoclax, and Gilteritinib offer a glimmer of hope, providing avenues to extend and improve the quality of life for those battling this aggressive disease.
A Battle Against AML: For many, the diagnosis of AML is met with a sense of disbelief and fear. The journey through treatment protocols often feels like an uphill battle, fraught with challenges and setbacks. However, amidst the darkness, there are rays of hope in the form of innovative therapies like Azacitidine, Venetoclax, and Gilteritinib.
Azacitidine: Azacitidine, a chemotherapy medication, has emerged as a promising treatment option for individuals with AML. Despite its unavailability on the NHS, the support from local health boards and research pharmaceutical companies has made it accessible to those in need. Its mechanism of action involves inhibiting DNA methylation, thereby restoring normal cell function and impeding the proliferation of leukemia cells. Through its use, patients experience extended periods of remission and improved quality of life, providing a beacon of hope in the battle against AML.
Venetoclax: Another weapon in the arsenal against AML is Venetoclax, a BCL-2 inhibitor. While not yet available through NHS channels, its efficacy in combination with other chemotherapy agents has shown remarkable results in clinical trials. Venetoclax works by targeting the BCL-2 protein, which plays a crucial role in promoting leukemia cell survival. By disrupting this mechanism, Venetoclax induces apoptosis in leukemia cells, effectively reducing disease burden and prolonging survival. The synergy between Venetoclax and other chemotherapeutic agents offers new avenues for treatment, instilling optimism in patients and caregivers alike.
Gilteritinib: Gilteritinib, a recently developed FLT3 inhibitor, represents a breakthrough in the treatment of AML. Despite its limited availability, its effectiveness in targeting FLT3 mutations has garnered attention within the medical community. By inhibiting FLT3 signaling pathways, Gilteritinib suppresses the proliferation of leukemia cells, leading to disease remission and improved outcomes. Its integration into treatment regimens alongside Azacitidine and Venetoclax underscores the paradigm shift in AML therapy, offering tailored approaches to address the diverse genetic landscape of the disease.
Hope on the Horizon: The convergence of Azacitidine, Venetoclax, and Gilteritinib marks a significant milestone in the fight against AML. For the first time, these three agents are being utilized concurrently, with the aim of achieving disease control and facilitating a path towards a stem cell transplant. This innovative approach holds promise for patients like myself, offering renewed hope and optimism in the face of adversity.
The Road Ahead: As I embark on this journey with Azacitidine, Venetoclax, and Gilteritinib, I am filled with a mixture of emotions – hope, apprehension, and determination. While the road ahead may be fraught with challenges, I am steadfast in my resolve to overcome this disease and emerge victorious. With the unwavering support of my healthcare team, loved ones, and the advancements in medical science, I am confident in my ability to navigate this journey with courage and resilience.
Conclusion: The battle against AML is not one fought alone; it is a collective effort fueled by determination, innovation, and hope. Through the integration of groundbreaking therapies like Azacitidine, Venetoclax, and Gilteritinib, we stand at the forefront of a new era in AML treatment, where the possibilities are as vast as the human spirit. As I continue on this journey, I am reminded of the words of Helen Keller, "Although the world is full of suffering, it is also full of overcoming it." Together, we will overcome AML and emerge stronger, resilient, and filled with hope for the future.
As I stand at the precipice of another chapter in my battle with Acute Myeloid Leukemia (AML), I find myself reaching for straws – grasping onto any semblance of hope, no matter how fragile it may seem. The relentless onslaught of this disease has pushed me to the edge of conventional treatments offered by the NHS, compelling me to venture into the uncharted territories of trial and experimental pharmaceutical companies. In this pursuit, I have come to realize that I have nothing to lose, but everything to gain.
Supported by the unwavering commitment of the University Hospital of Wales (UHW), I am not alone in this endeavor. The dedicated staff and doctors at UHW, despite being faced with overwhelming challenges, continue to provide invaluable support with the utmost professionalism. Their tireless efforts, coupled with regular blood transfusions, serve as a beacon of hope in an otherwise daunting landscape.
With each passing day, I remain ever hopeful that this new approach will bring me one step closer to the possibility of a stem cell transplant or bone marrow therapy – a chance for renewed health and vitality. The ethos guiding this treatment is characterized by a three-pronged attack on the malignant white cells, offering a glimmer of optimism in the face of adversity.
While the specifics of the drugs involved may be subject to confidentiality, I am committed to keeping everyone informed and updated on my progress. Our social media followers, along with my cherished family and friends, serve as pillars of strength, offering unwavering support in my darkest hours.
As I continue to navigate this challenging journey, my fight and hope remain undiminished. Every setback is met with resilience, every obstacle with determination. Though the road ahead may be fraught with obstacles, I am steadfast in my resolve to persevere.
In the battle against AML, every victory – no matter how small – is a cause for celebration. And so, with unwavering determination and the support of my loved ones, I press on. My fight is far from over, but with each passing day, I am one step closer to reclaiming my health and my future.
As the phone rang, disrupting the quiet of my home, I felt a pang of anxiety. I recognized the voice instantly—Professor Dr. K****r. My heart sank. I had a sinking feeling about what was to come. Unfortunately, my suspicions were confirmed. The treatments I had undergone hadn't achieved the desired outcome. The white cells in my body remained stubbornly large, rendering them ineffective against whatever they were meant to combat. They needed to be reduced to a size one million times smaller than their current state—merely a millionth of a single micron. It was a daunting prospect, to say the least.
Despite the grim news, I hadn't lost all hope. I had opted to participate in experimental trials, not just for my sake but for the countless others who might face similar battles in the future. Optimism was a trait I clung to fiercely, but I couldn't ignore the gravity of my situation. The reality loomed before me—I was teetering on the edge of a precipice, and the fall could be swift and merciless.
"I don't want to die yet," the words lingered in the air, heavy with a mixture of fear, defiance, and resignation. I understood the odds, but I refused to surrender to them without a fight. The experimental, unlicensed medications offered a sliver of hope—a chance, however slim, to prepare my body for the ultimate gamble: a stem cell transplant. The alternative was a grim forecast—five to seven months of palliative end-of-life care.
The weight of my circumstances settled upon me like a suffocating blanket. Yet, amidst the turmoil, there was a glimmer of determination. I was resolved to face this challenge head-on, armed with whatever tools were at my disposal. The road ahead was fraught with uncertainty, but I drew strength from the knowledge that I wasn't alone. The support system surrounding me—my loved ones, medical professionals, and the unwavering compassion of strangers—served as pillars of strength in my darkest hours.
As I grappled with the enormity of my situation, another emotional upheaval added to the tumult. The recent rehoming of Lily Longdog, a faithful companion whose presence had been a source of comfort and solace, left a void in my heart. The ache of her absence compounded the already overwhelming emotions, stirring a rawness within me that I hadn't anticipated. It was a reminder of the fragility of life and the transient nature of our connections.
Despite the emotional turbulence, I resolved to share my journey openly, for as long as I am able. Social media platforms have become a conduit for my thoughts, fears, and fleeting moments of hope. It was a way to bridge the distance between myself and those who cared, a lifeline in a sea of uncertainty.
Lily's transition into her new life unfolded like the chapters of a heartening novel. Steve, her newfound companion, filled her days with boundless joy and unbridled fun. Under the care of her remarkable guardians, Lily embarked on a journey of love and adventure that surpassed even the happiest moments we had shared.
Steve, a kindred spirit to Lily, quickly became her partner in mischief and play. Their laughter echoed through the halls, a testament to the genuine connection forming between them. Lily's new guardians, with hearts as vast as the ocean they frequented for holidays, proved to be the ideal custodians for my beloved furry friend.
The prospect of three beach vacations a year spoke volumes about the dedication of Lily's new family. I envisioned her frolicking in the sand, the salty breeze tousling her fur as she reveled in the freedom of the open shores. It was a life of abundance – filled with love, spoils, and the simple pleasures of beachside bliss.
However, joy wasn't the only currency in Lily's new home. It seemed that Steve had already initiated a playful taxation system. A cheese tax, demanded with a mischievous twinkle in his eye, and a milk tax, enforced by the ever-enthusiastic Lily. Imagining their daily routine brought a smile to my face, knowing that their antics would fill the household with laughter and love.
As I marveled at the potential chaos of Lily's new life, a twinge of jealousy crept in. How I longed to be a part of the mirth and mayhem that surely awaited them. Yet, that envy was quickly eclipsed by overwhelming elation. Lily had found a family whose warmth and affection mirrored my own, ensuring that her days would be filled with happiness, playfulness, and the genuine love she deserved.
In the end, while I might miss the daily companionship, the sheer joy that Lily would experience in her new home was a priceless gift. My heart swelled with gratitude, knowing that she had landed in a place where her spirit could soar, and her days would be painted with the hues of love and laughter.
I had a vision born out of a love for our four-legged companions – vending machines dispensing dog waste bags strategically placed in high-volume dog areas. The concept was simple yet revolutionary, a solution to a common problem that dog owners faced daily. We rallied, worked tirelessly, and secured the machines, the product, the packaging, and several prime locations. The excitement was palpable as we geared up for the grand launch, unaware that fate had a different script for the day.
On the day that was meant to mark the beginning of our venture, destiny took an unforeseen turn. While out for a routine walk, I found myself grappling for breath, pain coursing through my body, rendering me incapable of walking. Panic set in, and with a trembling hand, I dialed for an ambulance. Little did I know that this moment would set in motion a series of events that would forever alter the trajectory of my life.
The ambulance rushed me to A&E East Glamorgan Hospital, where the corridors echoed with the urgency of medical care. Fear gripped me as I lay there, struggling for every breath. The initial concern, however, wasn't my heart, as one might expect. Instead, it was the sudden appearance of an impeccably dressed gentleman surrounded by a team of consultants, each one eagerly clutching clipboards and taking notes.
In the midst of my pain and confusion, the air heavy with uncertainty, the impeccably dressed gentleman approached. His eyes, a mix of compassion and professionalism, met mine. "You have A.M.L," he stated, the words hanging in the air like a foreboding storm. In my haze of pain, the first thought that crossed my mind was oddly whimsical – "Aston Martin Lagonda?" A momentary escape into the absurdity of confusion before the reality of his next words crashed over me.
"Acute Myeloid Leukemia," he explained, dispelling the automotive daydream with a heavy dose of reality. My heart sank, not from the initial confusion but from the weight of the diagnosis. In a flash, I was whisked away to U.H.E Heath to begin a journey that would test the limits of my strength and resilience – high-dose, intense chemotherapy.
As I sit down to express my gratitude, I'm overwhelmed by the outpouring of love and support from our incredible online community. To all 26,000 Instagram followers, thank you for being an integral part of our journey. Your likes, comments, and shared moments have transformed ordinary days into extraordinary ones. Each scroll through our feed has been a reminder of the warmth and connectivity that social media can bring. It's more than numbers on a screen; it's a community that has made our time together truly special. https://www.instagram.com/lilylongdog0/
The journey continued on TikTok, where 9,000 followers joined us in celebrating the joy that is Lily. The videos we created were not just about sharing snippets of our lives but about creating a shared space of laughter and delight. Your enthusiasm and engagement have fueled our creativity, turning Lily's antics into moments of shared joy. To each TikTok follower, thank you for finding joy in Lily's world – your presence has been a delightful addition to our digital family.
Facebook, with its 6,000 followers, became a canvas for shared laughter, chuckles, and, at times, tears. The community we found there embraced us with open hearts, turning every post into a conversation, every share into a virtual hug. Your presence turned the mundane into the extraordinary, and for that, we are immensely grateful.
To express the depth of our appreciation seems almost inadequate. Each like, comment, and share has left an indelible mark on our hearts. Your virtual cheers and words of encouragement have been a balm during challenging times and a joyful echo during moments of celebration. From the bottom of our hearts, myself and Lily extend our sincerest thanks to each and every one of you.
A special mention goes to Greyhound Rescue Wales, an organization that played a pivotal role in finding the ideal and perfect home for Lily. Your dedication to the well-being of animals has not only changed Lily's life but has also enriched ours. The tireless efforts and commitment of organizations like yours are the unsung heroes in the stories of countless furry companions finding their forever homes.
As we embark on new chapters and adventures, I carry with me the immeasurable gratitude for the digital family that has gathered around Lily and me. It's not just about the numbers; it's about the shared moments, the laughter, and the collective kindness that have made this online community a haven of love and positivity. Thank you, thank you, thank you – from the depths of our hearts. Lily and I are forever grateful for the joy you've brought into our lives.
It is with great difficulty that I express the challenges I am currently facing, both physically and emotionally. I feel compelled to reach out and share my thoughts with you, as you have been a significant part of my life.
Over the past few months, my health has taken an unexpected turn, and the harsh realities of my situation have become undeniable. The fine balancing act between sustaining my life and preventing the relentless progression of cancer has become increasingly precarious. As I navigate through this difficult journey, my mobility has suffered significantly, impacting the simple joys of life that were once taken for granted.
One of the most heart-wrenching consequences of this situation is the toll it has taken on my ability to care for and be with my constant source of compassion and unconditional love – Lily. She has been my beacon of light through thick and thin, a loyal companion who has witnessed both joyous moments and the trials of life. It is with a heavy heart that I acknowledge the limitations my health has imposed on our daily routines, particularly our cherished walks, which have become increasingly challenging for me.
In the face of these adversities, I find myself at a crossroads, forced to make decisions that are as difficult as they are inevitable. Currently, the medication I am taking is having a discernible effect, providing a window of opportunity for a potential transplant. However, embarking on this journey is not without its risks, with a 50/50 chance of success over the next two years. The prospect of failure is daunting, and in the event that the transplant is not successful, the alternative is palliative care – a short-lived period of 5 to 7 months.
It is within this context that I am compelled to consider the well-being of Lily, who deserves nothing but the best in life. The harsh reality that has hit home is that I may no longer be able to provide the love and care she deserves. The prospect of not being able to walk her as we once did is particularly heartbreaking. Lily, with her unwavering loyalty and affection, deserves a life filled with joy and the companionship she so freely gives.
This brings me to a decision that pains me deeply but is born out of love and responsibility – the possibility of finding a new home for Lily. I cannot emphasize enough how difficult and heart-wrenching this choice is for me. The love and bond we share are immeasurable, and the thought of parting ways is nothing short of agonizing.
In making this decision, I am considering Lily's happiness and well-being above all else. It is my utmost priority to ensure that she continues to experience the love and care that she has been accustomed to throughout her life. I believe that finding her a new home where she can thrive and be cherished is the responsible choice, given the uncertainties that lie ahead.
In the quiet spaces between rounds of chemotherapy, when the weight of treatment and the uncertainty of the future loomed large, there was Lily—an ever-present force of comfort, routine, and meaning. Her furry form, adorned with unconditional love, brought a warmth that transcended the clinical confines of my medical journey.
Lily, with her wagging tail and soulful eyes, became more than just a pet. She transformed into a lifeline, a steadfast companion who gave me strength when my own wavered. Her loyalty knew no bounds, and in those moments of physical weakness and emotional vulnerability, she stood by me, offering a unique brand of solace that only a four-legged friend can provide.
Unable to work during this challenging period, Lily and I embarked on a journey of togetherness that went beyond the walls of our home. We explored the world at a pace dictated by the rhythm of our hearts, finding joy in the simplicity of shared moments. One of the silver linings in this challenging chapter of my life was the opportunity to connect with other dog owners, forging bonds that were as unbreakable as the leash that connected us during our walks.
Our adventures together took an unexpected turn when we stumbled upon the world of gastronomy. Lily and I, armed with an adventurous spirit and an appreciation for good food, began our foray into the realm of gourmet burgers. These culinary escapades turned into something more profound—they became a source of joy, a shared passion that added a sprinkle of delight to our days.
What began as a casual exploration of local burger joints evolved into something quite unexpected. Lily, with her photogenic charm and a palate for the finer things in life (read: juicy burgers), became a social media sensation. Her Instagram account, a chronicle of our gastronomic adventures, garnered attention far beyond what I could have anticipated.
The highlight of this unexpected journey was the creation of our very own gastro burger reviews. Lily, with her discerning taste and endearing canine quirks, added a unique flavor to our reviews. Her interactions with various burger joints, sprinkled with a dash of canine humor, made Lily an internet sensation. To my surprise, the page amassed quite a following—people from various corners of the world resonated with Lily's charm and our shared love for food.
In the world of social media, Lily became a symbol of joy, resilience, and the unbreakable bond between humans and their pets. Her posts brought smiles to faces across the globe, and the community that formed around Lily's adventures became a source of support and connection during moments when I felt isolated in my health battle.
Through this unexpected journey, I have come to realize the profound impact that a furry friend can have on one's life. Lily, with her kind nature and ability to find joy in the simplest of moments, has been my teacher, my confidante, and my constant source of inspiration.
As I reflect on the past three years, I am filled with gratitude for the privilege of being Lily's guardian, friend, and companion. She has not only enriched my life but has also touched the hearts of those who have followed our journey. Lily's ability to bring joy amidst adversity is a testament to the resilience and unconditional love that our animal companions offer.
In closing, I want to express my deepest thanks to Lily, my canine muse, and to all those who have joined us on this unexpected adventure. Your support, encouragement, and shared laughter have been a balm to my soul during the challenging moments of my health journey. Lily, with her wagging tail and infectious enthusiasm, has not only been a faithful friend but a beacon of light in the midst of darkness.
Thank you, Lily, for being my constant companion, my source of joy, and my furry reminder that even in the most challenging chapters of life, there is beauty to be found in the simple act of sharing a burger with a loyal friend.
Life's journey takes us through unexpected twists and turns, often leading us to forge connections that become the very essence of our existence. In this narrative, we delve into the poignant story of Colin, a resilient soul battling terminal bone marrow illness, and his unwavering commitment to his faithful companion, Lily. This GoFundMe
Life's journey takes us through unexpected twists and turns, often leading us to forge connections that become the very essence of our existence. In this narrative, we delve into the poignant story of Colin, a resilient soul battling terminal bone marrow illness, and his unwavering commitment to his faithful companion, Lily. This GoFundMe campaign not only seeks to secure Lily's future after Colin's passing but also aims to promote a vital message about responsible dog waste management. With the support of Eco Hound Waste Bags, Colin's legacy lives on through an initiative that benefits Lily and our environment. Colin's journey has been one of courage and fortitude, as he faces the challenges brought about by a terminal bone marrow illness. Throughout his life, Colin has found solace, companionship, and boundless love in the presence of Lily, his beloved canine companion. Lily's wagging tail and unconditional devotion have been a source of comfort and strength for Colin, especially during his toughest moments.
As Colin confronts the reality of his condition, his primary concern is ensuring a secure and loving future for Lily.
https://www.gofundme.com/f/ss4hv6
This campaign seeks to raise funds that will be devoted to Lily's ongoing care, including veterinary expenses, food, and any other essentials that will allow her to continue thriving even a
As Colin confronts the reality of his condition, his primary concern is ensuring a secure and loving future for Lily.
https://www.gofundme.com/f/ss4hv6
This campaign seeks to raise funds that will be devoted to Lily's ongoing care, including veterinary expenses, food, and any other essentials that will allow her to continue thriving even after Colin's passing. Every donation contributes to providing Lily with the life she deserves, honouring the profound bond she shares with Colin.
https://www.gofundme.com/f/ss4hv6
Yet, Colin's vision extends beyond Lily's well-being. Recognise the importance of responsible pet ownership and environmental stewardship, Colin has partnered with Eco Hound Waste Bags to launch a dog waste bag initiative. This initiative aims to distribute free Eco-friendly dog waste bags within the community, advocating for the proper disposal of pet waste and highlighting the impact of responsible practices on our environment.
Promoting Responsible Dog Waste Management:
The funds raised through this campaign will serve a dual purpose:
https://www.gofundme.com/f/ss4hv6
Lily's Continued Care: The funds will be used to ensure Lily's comfort and happiness in the absence of her beloved owner. From regular check-ups to quality nutrition and affectionate care, Lily's well-being will be a top priority.
Eco-Friendly
The funds raised through this campaign will serve a dual purpose:
https://www.gofundme.com/f/ss4hv6
Lily's Continued Care: The funds will be used to ensure Lily's comfort and happiness in the absence of her beloved owner. From regular check-ups to quality nutrition and affectionate care, Lily's well-being will be a top priority.
Eco-Friendly Waste Bag Initiative: A significant portion of the funds will be dedicated to furthering Colin's vision of responsible dog waste management.
https://www.gofundme.com/f/ss4hv6
Through partnerships with Eco Hound Waste Bags, free dog waste bags will be distributed to local pet owners, fostering awareness about the importance of waste disposal and its impact on our surroundings.
Joining the Cause: Making a Difference Together
By contributing to this campaign, you become an integral part of a heartwarming tale that embraces love, compassion, and environmental consciousness. Your support not only ensures Lily's future but also furthers the cause of responsible pet ownership and sustainable living. Together, we can honour Colin's legacy, celebrate his profound bond with Lily, and create a positive impact that resonates within our community and beyond.
Colin's journey has been one marked by strength and determination. In the spirit of carrying his legacy forward, we invite you to join us on this remarkable journey. Let's unite to honour Colin's unwavering love for Lily and his commitment to a cleaner, healthier environment. Your contribution, no matter the size, holds the power to make a difference that echoes through time, honouring Colin's memory while uplifting Lily's future and our shared world.
Before the biopsy, local anesthesia is administered to numb the area where the biopsy needle will be inserted. This helps minimize pain during the procedure.
Once the area is numb, the doctor will insert a special needle into the bone, typically the back of the hipbone (posterior iliac crest). They will then extract a small amount of bon
Before the biopsy, local anesthesia is administered to numb the area where the biopsy needle will be inserted. This helps minimize pain during the procedure.
Once the area is numb, the doctor will insert a special needle into the bone, typically the back of the hipbone (posterior iliac crest). They will then extract a small amount of bone marrow using a syringe attached to the needle.
In addition to the biopsy, the doctor may perform an aspiration, where a liquid portion of the bone marrow is drawn out for examination.
This is uncomfortable procedure but with copious amounts of Gas & Air, One really no longer cares.
High intensity chemotherapy causes more severe side effects compared to standard chemotherapy. These side effects may include nausea, vomiting, hair loss, fatigue, diarrhea, mouth sores, and a weakened immune system. The side effects can be debilitating and may require additional supportive care and medications.
High doses of chemotherapy
High intensity chemotherapy causes more severe side effects compared to standard chemotherapy. These side effects may include nausea, vomiting, hair loss, fatigue, diarrhea, mouth sores, and a weakened immune system. The side effects can be debilitating and may require additional supportive care and medications.
High doses of chemotherapy can suppress the bone marrow ability to produce blood cells, leading to a condition known as myelosuppression. This condition increases the risk of infection, anemia (low red blood cell count), and bleeding problems (low platelet count).
The immune system becomes compromised due to the impact on bone marrow function, making the patient highly susceptible to infections. Even minor infections can become serious and life-threatening in this weakened state.
I suffered with many side effects. Most of them were debilitating, weakness, the sense of helplessness,
Remember, everyone's experience with chemotherapy is unique, and it's essential to find what works best for you. Be patient with yourself and allow yourself to experience a range of emotions throughout this journey. Reach out to your he
I suffered with many side effects. Most of them were debilitating, weakness, the sense of helplessness,
Remember, everyone's experience with chemotherapy is unique, and it's essential to find what works best for you. Be patient with yourself and allow yourself to experience a range of emotions throughout this journey. Reach out to your healthcare team whenever you have concerns or questions, and remember that you are not alone in facing these trials. Many people have gone through chemotherapy and come out stronger on the other side. Take it one day at a time, and stay focused on the goal of getting through this challenging time.
These are very challenging times for me, and my journey still continues, with more Chemotherapy & a Stem cell transplant.
Any questions, queries or just fancy a chat..
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